tag:blogger.com,1999:blog-648323027563656557.post2857904532322181031..comments2024-03-11T11:53:06.395+00:00Comments on Downs Side Up: Shine Bright Natty: Nativity Star RealisationsDowns Side Uphttp://www.blogger.com/profile/12806066168756340802noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-648323027563656557.post-82993066520313258032014-01-14T18:37:24.412+00:002014-01-14T18:37:24.412+00:00What a fantastic role for her, I totally understan...What a fantastic role for her, I totally understand how torn you felt over this and the emotions it brought. I can't think of Ethan's future too much and if I do it's always in the worse case scenario as I'm scared to give myself too much hope. Not that you shouldn't have hope, it's more like a self defence technique in the wonderful world of emotions. My thing is that I can't see that Ethan will ever be able to drive, something that I feel is a natural thing to take for granted. I also question about him finding love, having a family, I have no idea if it is even possible. This is why I am teaching myself to take everyday as it comes, so it doesn't hurt me so much. <br /><br />I had a look at the photos, it looks like she did an amazing job and I know she made you proud. <br /><br />Thanks for linking up with Small Steps Amazing Achievements :0) (Sorry It's taken me a while to get round to this post)<br />x Anonymoushttps://www.blogger.com/profile/14118410276312559793noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-421070297288560102013-12-16T23:49:35.833+00:002013-12-16T23:49:35.833+00:00She is indeed, way beyond her years.
Who knows wh...She is indeed, way beyond her years. <br />Who knows what the future holds, but I will now go with the flow.<br />Thank you<br />Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-82103203008858328432013-12-16T23:25:53.218+00:002013-12-16T23:25:53.218+00:00Oh Hayley. I don't know what to say, except th...Oh Hayley. I don't know what to say, except that Alice is a wise young lady. X Juliesnotebookhttps://www.blogger.com/profile/09028141603260983336noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-41795853280151129852013-12-15T23:22:37.591+00:002013-12-15T23:22:37.591+00:00Thank you Vicky. She did shine and I laughed as we...Thank you Vicky. She did shine and I laughed as well as cried. It was beautiful and we took it for what it was, a precious moment in time.Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-91157573353575676212013-12-15T23:21:26.934+00:002013-12-15T23:21:26.934+00:00Who knows indeed. My understanding is that chances...Who knows indeed. My understanding is that chances of fertility for Natty are low, but yes, where the world will take her, who knows.Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-19263964026616166922013-12-15T23:20:29.196+00:002013-12-15T23:20:29.196+00:00The bounty was indeed a top tip! It went well and ...The bounty was indeed a top tip! It went well and I did not make a buffoon of myself. She was the perfect Mary in every way. And yes, I feel so much better having written about the fears and so many parents in the same boat have joined in sharing their similar feelings. H xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-781188796418159342013-12-15T23:18:41.994+00:002013-12-15T23:18:41.994+00:00Sorry Liz! Ooops, I will consider a tears warning ...Sorry Liz! Ooops, I will consider a tears warning in future :)<br />You are right, and since writing I have felt so much happier about the situation. The evening was wonderful and we all lived in that moment for what it was. H xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-29670617601939185772013-12-15T23:17:21.904+00:002013-12-15T23:17:21.904+00:00My understanding is that most adults with DS are i...My understanding is that most adults with DS are infertile, so I think that is what got to my heart the most, the fact that I will one day have to explain that. But I envisage/ hope for her living independently with a partner or friend, having a job and mortgage, hobbies and passing her driving test. It's good to aim high. H xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-38622414839213101912013-12-15T23:14:52.845+00:002013-12-15T23:14:52.845+00:00Thank you Paul. I was speaking more from an infert...Thank you Paul. I was speaking more from an infertility point of view, rather than putting limitations on Natty, something we try never to do. But, yes, if she cannot have her own children there will be love and a partner and independent living, a job and fulfilment. That is what I aim for daily for her. H xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-17934283977192214772013-12-15T23:11:59.223+00:002013-12-15T23:11:59.223+00:00Thank you Kylie. I think, in my understanding, tha...Thank you Kylie. I think, in my understanding, that Down's syndorme comes hand in hand with infertility, so I guess I was coming from the angle of having to explain that to her one day. I fully hope and expect her to live with a partner or marry one day, and yes, there will be love. H xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-16921019136710467772013-12-15T23:10:16.237+00:002013-12-15T23:10:16.237+00:00Thank you Mardra. I know that what ever Natty'...Thank you Mardra. I know that what ever Natty's future holds will be wonderful and filled with love. Thank you for being such a supportive friend xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-29584125303694726272013-12-15T16:51:00.330+00:002013-12-15T16:51:00.330+00:00Who knows what she can do? I'm with Alice, don...Who knows what she can do? I'm with Alice, don't unnecessarily limit your hopes. Part of acceptance is daring to dream big, have hopes and have raised expectations. l mean suitably raised standards. The only time it's not a good idea if Natalie is infertile. Taranoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-86063724791458913872013-12-15T15:36:35.928+00:002013-12-15T15:36:35.928+00:00Another one here, trying to type through a mist of...Another one here, trying to type through a mist of tears.<br /><br />As others have said, no limitations on Natty, please. You only have to look at the pic of Natty teaching Max, to see the intelligence shining out of her eyes!<br /><br />Forgive me if this is old hat to you, but have you ever heard of Veras' Children? You should:<br /><br />https://iahp.org/Down-Syndrome-Veras-Kids<br /><br />Very best wishes to you and your family! Paul xxxPaul Youdhttps://www.blogger.com/profile/11025826576593530708noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-23250669467689986672013-12-13T16:56:59.160+00:002013-12-13T16:56:59.160+00:00You are so right and yes, we have the teenage stro...You are so right and yes, we have the teenage strops to deal with first. Thanks for reminding me ;)Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-38365640249337286422013-12-13T16:56:21.997+00:002013-12-13T16:56:21.997+00:00You are so right Anita, we must all deal with what...You are so right Anita, we must all deal with what life throws at us as it happens and always be conscious of the feelings of others. So many people make assumptions without thinking beyond their own experiences. Much love to you all xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-69024489880861550322013-12-13T16:54:16.118+00:002013-12-13T16:54:16.118+00:00Ha! Sandy, you make me laugh. That is quite true o...Ha! Sandy, you make me laugh. That is quite true of course ;)Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-55408576197711719992013-12-13T16:53:34.119+00:002013-12-13T16:53:34.119+00:00It seems to be a very deep rooted and raw emotion ...It seems to be a very deep rooted and raw emotion for many of us. We just have to learn to accept down't we. H xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-39851096593807290752013-12-13T15:55:24.038+00:002013-12-13T15:55:24.038+00:00Everyone wrote me off having kids. I'd had two...Everyone wrote me off having kids. I'd had two miscarriages a raft of undiagnosable "women's problems" and then finally I fell pregnant and gave birth to my tiny Joseph at 27 weeks. I'd written myself off too, to be honest. But here we are :) My health has robbed me of having anymore and Joseph would dearly love a sibling, but hey that's life. <br /><br />Natty is only a little girl you would be very cross with anyone who put limitations on her. Who knows what sort of woman Natty will be, none of us do. And maybe there will be love and babies.<br /><br />Even if there are no babies there will be love.<br /><br />And thats all that really matters.Kykareehttps://www.blogger.com/profile/00316100979546486127noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-16383160834911413532013-12-13T12:43:31.478+00:002013-12-13T12:43:31.478+00:00I often have the same questions about my autistic ... I often have the same questions about my autistic daughter, who talks about having children all the time. I try to make myself take the "one day at a time" approach. We don't know, any of us, what the future holds. I'm not trying to tell you our daughters might successfully have children. Rather, that they might have any number of futures. So hold tight to the bits of their present that are joyful. And chin up.<br /><br />ps - I'm going to have to tell you off just a little bit because you just made me bawl my eyes out in a cafe. I've had to pretend to several staff that I suffered a sudden onset allergy. Please ensure you either write far less beautifully, or that I am somewhere appropriate when reading your blog. Thank you muchly.<br />Liz Daweshttps://www.blogger.com/profile/04678523159650027749noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-27149780947291926162013-12-12T15:24:41.082+00:002013-12-12T15:24:41.082+00:00OH Hayley, I read this yesterday on my phone and h...OH Hayley, I read this yesterday on my phone and have "walked away from" 3 of my replies.<br />You *must* know I am here and your words are powerful <br />because they carry your truths and thus recognize the truths we carry within ourselves.<br /><br /><br /> Mardrahttp://www.mardrasikora.com/noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-63534244330924592052013-12-12T14:23:28.239+00:002013-12-12T14:23:28.239+00:00This is such a beautiful and emotional post. I am ...This is such a beautiful and emotional post. I am sure Natty will make a wonderful Mary, and definitely don't forget the tissues :) I'm contemplating some Bounty, isn't that supposed to be super absorbent?<br /><br />I love the pic of Natty sheep! It is so beneficial to discuss these types of feelings, both for self and others.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-47331046859151188732013-12-12T14:21:06.358+00:002013-12-12T14:21:06.358+00:00This is such a beautiful and emotional post. And s...This is such a beautiful and emotional post. And so eloquently written. I am sure Natty will be a wonderful Mary, and definitely don't forget the tissues. I'm contemplating Bounty, isn't that supposed to be super absorbent?<br /><br />I love the picture of Natty sheep :) I agree with others that the future is unwritten, but it can be so beneficial to discuss these feelings.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-32824667253732871772013-12-12T13:47:39.466+00:002013-12-12T13:47:39.466+00:00Beautiful heartfelt post hayley. Have many of thes...Beautiful heartfelt post hayley. Have many of these feelings myself as logan has autism but I agree with others, who knows what our wonderful children arw capable of! XAnonymoushttps://www.blogger.com/profile/03458937709332538809noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-43332200269540134112013-12-12T13:28:23.853+00:002013-12-12T13:28:23.853+00:00None of us have a crystal ball. The future is as ...None of us have a crystal ball. The future is as unwritten for your daughter as it is for you.<br />Worry for today. Tomorrow will have enough worries of its own.<br />You still have to get through inappropriate boyfriends and awful fashion choices!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-58526506928883380072013-12-12T12:13:20.394+00:002013-12-12T12:13:20.394+00:00Thank you so much for this lovely message Alice. I...Thank you so much for this lovely message Alice. I will work harder on not restricting but also accepting what lies before us. I will live in the moment and enjoy that nativity play! Much love darling. Thank you for treading the path ahead so well. H xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.com