tag:blogger.com,1999:blog-648323027563656557.post4247009596743974344..comments2024-03-28T16:29:04.865+00:00Comments on Downs Side Up: Living Life to the FullDowns Side Uphttp://www.blogger.com/profile/12806066168756340802noreply@blogger.comBlogger34125tag:blogger.com,1999:blog-648323027563656557.post-3932346162688902142013-10-26T18:17:18.728+01:002013-10-26T18:17:18.728+01:00Such a beautiful post. You express those feelings ...Such a beautiful post. You express those feelings so well. I'm so happy for you all that you are living life to the full and challenging stereotypes.SarahMummyhttps://www.blogger.com/profile/04103870858666628645noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-85169952531690831262013-08-29T22:36:43.851+01:002013-08-29T22:36:43.851+01:00Hello Hayley. As you may know I have followed you ...Hello Hayley. As you may know I have followed you for quite a while now on here and on facebook. And I am constantly inspired and in awe of you and your wonderful family. Natty is so precious and even though you have had many hurdles to jump over you have seemingly met them with such grace. When I was preg with my son billy it was said he was low risk of ds despite the fact that my younger brother is ds. Even though I didnt know the diagnosis until he was born I had an overwhelming love for him right there. I guess my experience with my lil brother helped me along. And although any mother wishes for a healthy baby we are the luckiest of all to have such angels and such special miracles. They amaze us, make us proud,and teach us every day how important it is to marvel at the littlest of achievements xxx Anonymoushttps://www.blogger.com/profile/11181507283419768974noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-4254072207628687602013-08-29T22:31:25.899+01:002013-08-29T22:31:25.899+01:00Hello Hayley. As you may know I have followed you ...Hello Hayley. As you may know I have followed you for quite a while now on here and on facebook. And I am constantly inspired and in awe of you and your wonderful family. Natty is so precious and even though you have had many hurdles to jump over you have seemingly met them with such grace. When I was preg with my son billy it was said he was low risk of ds despite the fact that my younger brother is ds. Even though I didnt know the diagnosis until he was born I had an overwhelming love for him right there. I guess my experience with my lil brother helped me along. And although any mother wishes for a healthy baby we are the luckiest of all to have such angels and such special miracles. They amaze us, make us proud,and teach us every day how important it is to marvel at the littlest of achievements xxx Anonymoushttps://www.blogger.com/profile/11181507283419768974noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-34754193056259291922013-07-04T05:32:09.847+01:002013-07-04T05:32:09.847+01:00Aww, such a great story. It reminds me of my cousi...Aww, such a great story. It reminds me of my cousin, because this exact thing happened to her and my aunt. She recently graduated from elementary school (like all of her same age classmates) and is off to high school in the fall.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-35031430029305117942013-03-16T18:00:35.004+00:002013-03-16T18:00:35.004+00:00Tears filled my eyes as I was transported back to ...Tears filled my eyes as I was transported back to our home birth of our now 12 year old "surprising treasure"- Bethany. Our midwife suspected but could not bring herself to tell me. We went the next day to her well baby checkup and our Dr. blurted out the news- I'm sure your baby has down syndrome. I can so relate to your feelings- but God! Isn't it amazing what a treasure I never knew I wanted or needed can be brought into our lives and transform it so completely! Blessings to you and yours- love to connect sometime :) Cindy Barclayhttp://www.surprisingtreasures.comnoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-28830823112019479552012-11-21T20:56:20.638+00:002012-11-21T20:56:20.638+00:003rd time lucky replying to you.
I read your commen...3rd time lucky replying to you.<br />I read your comment with a tear in my eye, for how it should have been for us but also with determination to make it that way for others to come.<br />Would you consider writing a guest post for me? A positive account like yours would be very powerful.Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-44201149134873891892012-11-21T20:53:51.324+00:002012-11-21T20:53:51.324+00:00Your grandmother must have been an incredible woma...Your grandmother must have been an incredible woman, a pioneer. I thank her for paving the way xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-6644871611026489642012-11-21T20:52:34.033+00:002012-11-21T20:52:34.033+00:00Thank you Kate. Me? Yes, must remember that bit.Thank you Kate. Me? Yes, must remember that bit.Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-14041077325855849462012-11-21T20:52:07.261+00:002012-11-21T20:52:07.261+00:00Thank you Gemma xThank you Gemma xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-58102032449462516702012-11-21T19:56:55.789+00:002012-11-21T19:56:55.789+00:00I cried the whole time that I read this article. M...I cried the whole time that I read this article. My uncle was born with Down, in a time when children "like him" were placed in institutions. My grandmother refused, and raised him. Being a mother to a special needs child myself, (autism) I often think about what she went through, and wish that she had lived long enough to counsel me in these things. I parent my child while remembering her strength and determination that he experience every part of life.Country Girl Dessertshttps://www.blogger.com/profile/04736315337162562768noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-78951923002411103322012-11-21T19:56:44.308+00:002012-11-21T19:56:44.308+00:00I cried the whole time that I read this article. M...I cried the whole time that I read this article. My uncle was born with Down, in a time when children "like him" were placed in institutions. My grandmother refused, and raised him. Being a mother to a special needs child myself, (autism) I often think about what she went through, and wish that she had lived long enough to counsel me in these things. I parent my child while remembering her strength and determination that he experience every part of life.Country Girl Dessertshttps://www.blogger.com/profile/04736315337162562768noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-18534962351579765182012-09-28T05:26:23.724+01:002012-09-28T05:26:23.724+01:00Thank you so much for sharing your story and for y...Thank you so much for sharing your story and for your blog!! I'm grateful to you for taking the time to share your heart and your experience! I found you via Pinterest. <br /><br />Our sweet baby born with down syndrome was also born at home but we were very blessed in that she had/has no health issues at all. She was a week and a half late (which for me was early since my other babies were btwn two and three weeks late). I'm so thankful that we had no need to transfer to the hospital and her entrance into the world was able to be gentle and loving like my other births thanks to her good health. I feel so grateful and even a little guilty when I realize just how blessed we were in this bc it is so often not the case. Although I knew the moment I saw her, my sweet midwife was able to gently, lovingly and positively tell us her suspicions of DS. Personally I would have felt violated and deceived if she had known and tried to hide it from us. Anonymoushttps://www.blogger.com/profile/17213549862921915878noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-19553790141926868522012-07-26T20:00:59.144+01:002012-07-26T20:00:59.144+01:00A wonderful and inspiring post. XA wonderful and inspiring post. XHelloitsgemmanoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-60667423947698107562012-07-26T15:08:30.024+01:002012-07-26T15:08:30.024+01:00Well, you know I love you already and this post is...Well, you know I love you already and this post is so powerful. Tears in my eyes when I read about the prediction of you being an ambassador. Someone saw into the future there. Keep doing what you are doing but also looking after you in the midst of it all.Kate On Thin Icehttp://kateonthinice.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-45939025546001218752012-06-25T06:45:01.904+01:002012-06-25T06:45:01.904+01:00Hayley, it was a pleasure meeting you at Brit Mums...Hayley, it was a pleasure meeting you at Brit Mums Live on Saturday. I have tears in my eyes reading this account of your first moments with your daughter. I'm so sorry I missed your reading at the end of the conference. Thank you for this honest, measured and beautiful piece xMichelle Reeves - Bod for teahttps://www.blogger.com/profile/04719695398854744448noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-80865680212454138812012-06-24T23:50:37.900+01:002012-06-24T23:50:37.900+01:00Bless you! Thank goodness @allforalenya grabbed me...Bless you! Thank goodness @allforalenya grabbed me afterwards. I am still shaking today xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-7610299898679569882012-06-24T23:49:47.449+01:002012-06-24T23:49:47.449+01:00Thank you for sharing your story. Life is such a l...Thank you for sharing your story. Life is such a lottery but it is all down to how we deal with it isn't it. Send my thanks to your husband too for the wondeful work he does xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-48570882385386268552012-06-24T22:35:29.049+01:002012-06-24T22:35:29.049+01:00Hi Hayley,
After meeting you at Britmums Live only...Hi Hayley,<br />After meeting you at Britmums Live only yesterday I just wanted to let you know just how much of an inspiration you are. Natty is truly beautiful! <br />Your reading really touched me and I had to contain myself from running up to meet you on the stage and giving you the biggest hug ever!<br />xxLaurahttps://www.blogger.com/profile/07693927098032739132noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-30368665304813476192012-06-24T12:15:30.399+01:002012-06-24T12:15:30.399+01:00I saw you on twitter and came for a read. A truly ...I saw you on twitter and came for a read. A truly amazing story. Honest and very real. you and your entire family are amazing! I look forward to reading more about you all. I have MS, found our recently and i often sit and have days when i feel sorry for myself and days when i worry about my children getting it in there adult life. Buy its nothing compared to what your little Natty goes through! My husband is a carer and think children/young adult withs downs syndrome are trylu amazing children. xxAnonymoushttps://www.blogger.com/profile/13084088180044281845noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-88928065389951151292012-06-23T22:51:37.526+01:002012-06-23T22:51:37.526+01:00I feel awful and sad that I had never met anyone w...I feel awful and sad that I had never met anyone with DS before Natty was born. I wish I had had your wonderful experience. Thank you for telling me xDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-34948846043516988172012-06-23T22:03:13.975+01:002012-06-23T22:03:13.975+01:00Absolutely. Off to find you in Twitter, thank you...Absolutely. Off to find you in Twitter, thank you for getting in touch.Downs Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-75205781215485948262012-06-23T22:02:25.147+01:002012-06-23T22:02:25.147+01:00Bless you for sharing Kara. I am aware of SWAN, sh...Bless you for sharing Kara. I am aware of SWAN, shared a few moments with an amazing blogger renataBplus3 this weekend who is going thro similar. I struggled for 2 years if I'm honest. And we all still have our days of 'why us'. Much love<br />HayleyDowns Side Uphttps://www.blogger.com/profile/12806066168756340802noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-78786461570266789162012-06-23T21:52:42.170+01:002012-06-23T21:52:42.170+01:00I have been here. But you write it better than I t...I have been here. But you write it better than I tell. My problem differs slightly as to the outside world my baby looks "normal" but he is my baby SWAN(syndrome without a name) and is amazing. He too is an ambassador like your beautiful daughter. I felt so much pain when I found out. I still grieve 3 years on but less and less each day. We are just mummies with different days but mummies all the same. <br />Beautiful post. I wish I had been at Britmums to hear you speak xxxKarahttps://www.blogger.com/profile/14361484632604675406noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-8120182466357095192012-06-23T21:27:11.300+01:002012-06-23T21:27:11.300+01:00I hopped here from a Britmumslive retweet and so g...I hopped here from a Britmumslive retweet and so glad I did! A beautiful post and an inspiring blog. Growing up on our street there was a boy who had downs syndrome and we used to all play together as children and, in that way that children do, I don't recall thinking he was really any different to us. As we grew up I became aware of his downs however he had such a great character that I never saw it as a disability. I told his Mum when I was pregnant with Lucie that if I ever had a high chance of having a downs baby it wouldn't ever faze me knowing her son and what an ace person he is. xxLiz Mchttps://www.blogger.com/profile/10437123317997664347noreply@blogger.comtag:blogger.com,1999:blog-648323027563656557.post-56583877073421493392012-06-21T22:26:58.463+01:002012-06-21T22:26:58.463+01:00I've just found your blog! I've a little b...I've just found your blog! I've a little boy of 2 who has downs. Like you it was a shock (understatement!!) but now when I see his wee face and hear him call for mummeeee my heart sings! <br /><br />I'm @tandrmum on twitter. XElizabeth Hhttps://www.blogger.com/profile/03536426938908716667noreply@blogger.com