|I Love You Natty by Mia and Hayley Goleniowska|
I Love You Natty: A Sibling's Uplifting Introduction to Down's Syndrome by Mia and Hayley Goleniowska came about after big sister Mia left loving notes to her younger sibling.
Mum Hayley found them and knew in an instant that they would form the basis of precisely the kind of support book that she sought in the early days. She had wanted a positive visually appealing vehicle to explain to Mia why her sister had to spend some time in hospitable, why her parents were worried and how we all need a little extra help sometimes.
|Mia and Natty proudly show a copy of I Love You Natty|
Hayley talks about her motivations in this interview with Scope as she recalls the outdated results to her search for 'Down's syndrome' that appeared on her pc the night Natty was born.
The book has been met with acclaim and has been enjoyed and loved by children and adults alike. Kate Powell, editor of the Down's Syndrome Association Down 2 Earth Magazine gave it 99 stars in this wonderful review.
Books signings have been very emotional times, as we meet other families and listen to their stories.
Online Magazine The Mighty published Sister Helps Others See the Beauty in Down Syndrome here.
- I Love You Natty has been shipped to every corner of the globe, from the USA to Australia and everywhere in between.
- It has featured in numerous magazines and newspaper articles and has been reviewed by major charities, such as the DSA who gave it a 99 star rating.
- Chatty Natty took a copy onto the ITV Lorraine Show.
- Proud owners of the sibling introduction to Down's syndrome include: Lorraine Kelly, Norman Lamb MP, CBeebies Dr Ranj, Prof Nikolaides of Harley Street, Fiona Bruce MP, oh, and Prof Richard Dawkins (well, he needed a little educating).
- Copies can be found in Oxford and Cambridge University Libraries, The Houses of Parliament, The Department of Health, school classrooms, Great Ormond Street Hospital and the bookshelves of a house just like yours.
- Bloggers such as Honest Mum have reviewed and run competitions.
- We have donated over 300 books to various organisations, supporters and parents.
- It is now stocked in Waterstones, the Down's Syndrome Association, Mencap and Singing Hands, as well as Amazon UK.
- The book is rated 5* on Amazon.
- Youngsters with Down's syndrome say they adore the pictures and some children ask for it to be read to them every day.
|Talking About Down's Syndrome: Conversations for New Parents|
by Hayley Goleniowska and Fink Cards
Talking About Down's Syndrome: Conversations for new parents is a resource that is used by charities, Portage workers, midwives and health visitors as well as in training medical students.
Read Consultant learning disability nurse Jim Blair's review of the cards and how he thinks the conversations they spark will create attitudinal change in medical professionals.
The cards retail at £18.99 per set, and can be purchased through the Fink Cards website, along with other titles.
|Hayley Goleniowska contributed a chapter on working with families in book |
Supporting the Physical Health Needs of People with Learning Disabilities
In the vital new book by Steve Hardy, Eddie Chaplin and Peter Woodward aimed at medical professionals to ensure that they support the physical health needs of people with a learning disability, I was honoured to have been asked to contribute a chapter on the importance of working together with families to ensure healthcare equality.
You can read the chapter in full here, with tips and tools on ways to work together.
The book is priced at £28.00 and can be purchased via Pavilion Publishing.
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