Showing posts with label cornwall. Show all posts
Showing posts with label cornwall. Show all posts

#StC15 and #Britmums Live Here We come!

This is one of those I-really-don't-have-time-to-write-a -post posts, but I feel I need to write a quick update whilst I'm chucking things into a case, packing books into a box, painting nails and honing speeches...



I'm off to Derby tomorrow to the Strengthening the Commitment Conference #StC15, attended by learning disability nurses and lecturers. It's a wonderful opportunity to work together to best support those with a learning disability and their families. I always come home brimming with ideas and enthusiasm from these events and I have been honoured to be one of the speakers. I'll be talking about how the language of the medical professionals has a powerful impact on those they work with: Your Words Count.

You can watch the events and speakers here

From there it's down to London to the annual Britmums Live. It's a wonderful whirlwind of a couple of days. Top bloggers, newbies, journalists and publishers share knowledge and expertise from the nuts and bolts of the technical side to the legal aspects and the ethical ones too. 

I'll be joining others to talk about Support Through Blogging and Digital Activism as well as reading the open letter Dear Richard Dawkins, You Are Wrong at the keynotes. I'm also incredibly astonished that Downs Side Up has been listed in the finals of the Inspire Category in the Brilliance in Blogging Awards for the fourth year running.

So to say I'm a little nervous is an understatement. It will be three exhausting days, but you can change the world a lot in three short days. 

So wish me luck. I can't wait to get home to Cornwall again to celebrate father's day with the children on Sunday. Will keep you posted.

Must dash...

Hayley


Seaside Soul Food

We are lucky. 
We are blessed. 
In countless ways.

'Oh I do like to be beside the seaside!'

Not least because Cornwall is our home.
The place everyone dreams of retiring to, the county everyone squeezes in their hot cars to drive to en masse on Bank Holidays. Home to pasties, clotted cream and fabulous Camel Brut champagne!

If we leave our house we can be on one of about 15 beaches within 20 minutes, but when Natalia was born, the very first thought that entered my head was that we would never again go on holiday and we would never be able to go to the beach again. *small pause to re-read that phrase, scratch my head and wonder what on earth I was thinking*

Shame on you Collin Brewer

Shame on you Collin Brewer not shame on Cornwall.
In summary: a Local Councillor in Cornwall said (in the heat of the moment, when knackered and after a stroke that appently affects his temper) that children with disabilities SHOULD BE PUT DOWN.




I took a breath, raised my eyebrows and we all urged him to give up his post. 

Although many were furious, some even baying for blood, we all know people that say things they shouldn't from time to time. Poor bumbling buffoon we thought, so devoid of love and compassion in his life, so unaware of the wonders our children bring to our lives.

But embarrassing uncles saying things they shouldn't at weddings is one thing, a bigot with a microphone in his hand and in the public spotlight, weilding power, albeit in a small constituency in Cornwall is a dangerous thing. 


He and his wife entered a pub for a drink. Those present fell silent and everyone turned their backs. The majority in is town were shunning him.


The fact that he is an Independent candidate (and this is not about politics for a millisecond) means that he is aligned with no particular party and cannot be sacked.

But he did resign (under sufference and a very very hard hitting radio interview with Laurence Reed on BBC Radio Cornwall). 

We collectively breathed a sigh of relief, despite his reluctance to go he had seen sense at last. We could stop worrying about the riots that we feared might ignite, those turning up on his doorstep who were less forgiving than I.

He would surely disappear into the ether and lick his wounded pride...

Or would he?

Apparently 3 cards from wellwishers and a handful of local chums persuaded him to join a disability charity, work with local families to make amends, stand again as Councillor.

Now don't even begin to ask which 'well-we-do-the-same-with-our-cows' constituents voted for him (sadly I am quoting one gentleman) but he got voted in on Friday, winning the Wadebridge East seat by a gnat's whisker of 4 votes. 

There was a recount. There were boos from some present. The disbelief amongst fellow candidates, journalists and media was tangible.

I can't get angry, I have much bigger fish to fry, but I will play my part in seeing this fool removed from office. For he is embarrassing us here in Cornwall, the world convinced his attitude is 'just part of behind-the-times-thinking which we country bumpkins have down here', which is simple not true. 

The community here is Cornwall is nothing short of warm and supportive. Everyone looks out for each other and more importantly accepts each others quirks and differences. Here in Cornwall is truthfully the only place in the UK that no-one ever stares at Natty, then me as if to see how old I am, then back at her to see how 'affected she is by the condition'. 


The public at large are outraged by Brewer's arrogance and smugness upon re-election. He is still stating that he did nothing wrong. Perhaps we could forgive and move on if he said he was wrong and deeply sorry. I spent 10 minutes calming down a very angry postman on Friday, who knocked on the door to tell my husband and I how upset he and his wife are for families like ours, how angry is he that smug Brewer is back in.


Then there was the young window cleaner who told me he 'wanted to deck him'. I couldn't possibly comment on that.


The egg farmer thanked me for all I am doing to get Brewer out, because, it turns out his neice has Down's Syndrome and he said I spoke for the whole of his family, saying what they couldn't put into words for anger. 


And so you see, the entire cross section of Cornwall is pretty fed up with the bad press this guy is bringing us. Not to mention those who say they won't visit because they fear their children being treated badly on holiday here.


And to those who say 'it was only a throw away comment', 'he didn't mean it' you are agreeing that our children are second class citizens, that such comments don't matter because they have a disability, they are assumed not to have a voice. Well these comments do matter, as much as the terrible racist jokes that filled sitcoms in the 70s as I grew up. They were only 'having a laugh' back then too weren't they... 


Already 92% of all babies disgnosed as having Down's Syndrome during pregnancy are terminated by terrified parnets who recieve little or no support in what to expect. Yes Mr Brewer, put down. Do you begin to see why the comments are so real and so painful?

For those who think we campaigning for his removal are sh%t stirring, I guess you have it almost correct. Not stirring, but trying to remove the dirt from our shoes. Freshen up and move on. Sometimes you simply have to make a stand for what is right. When we shine light brighly into dark corners the shadows always become darker, and they usually protest. Read Outshining the Bigots here.


I've written a couple of open letters to Collin, which you can read here and here.


There's an ePetition to sign here.


I discovered the online complaints form for Cornwall County Council. Pop over and tick the first 5 boxes, mention Collin Brewer and his unacceptable comment, which was witnessed by Disability Cornwall and mention where you are from. I'm sure we can lodge more complaint than the 335 votes he received.


There's also a demonstration at County Hall in Truro on Wednesday morning if you want to peacefully show your feelings.

My interview with Pirate FM news is aired on Tuesday.


I've written to everyone I know at Westminster and every journalist I have ever worked with and every disability group I know worldwide.


We'll keep you posted.


Thank you for your support.



I leave you with Natty's thoughts on the matter Mr Brewer:









Downs Side Up is shortlisted in Inspire, Outstanding and Commentary sections of the 
Brilliance in Blogging Awards. You can vote for us here:


NOMINATE ME BiB 2013 COMMENTARY

Open Letter to Collin Brewer


Dear Mr Collin Brewer

Sadly, since I wrote this letter Cllr Brewer has decided to stand again in the May Local Elections. Misguided and naiive to the public feeling against him that spans the world.


AN OPEN LETTER TO WADEBRIDGE COUNCILLOR MR COLLIN BREWER

Dear Mr Brewer

I appreciate that you are probably rather snowed under at the moment, a little shell shocked perhaps, reeling from the worldwide reaction to your foolish and hurtful error. But feel that a few minutes spent reading my letter might change your life as it now stands.

I have just returned from a gathering of beautiful child models, meeting together in an historic building for a photoshoot, all of them bursting with life. There were giggles and hugs and sulks, play fighting and tickling, far too many crisps were consumed, and it took a lot of persuasion to get some to play ball in front of the cameras. Each one had a personality that filled the room and each was quite the little diva.

But you see one of the smallest and arguably the most cheeky was our daughter Natty. And Natty has Down's Syndrome. As in fact do all the other children we met that day.


My motivation to change the way the world views this extra chromosome is personal, and that day we had gathered to celebrate the doors that our children are opening, the perceptions they are gently changing and the inspiration they are providing to new families and children with disabilities everywhere simply by being included in mainstream advertising.



 Natty is 6, an ambassador, a teacher and melts hearts wherever she goes. She puts back far more into society than she takes from it, as she entertains, laughs, sings, dances, jokes, brings people together, teaches tolerance and an understanding of difference. For EQ cannot be measured financially. She intuitively watches out for the emotional needs of her classmates, always there for the needy, the upset, the ones with the bumped knees. You see Colin, a person's worth can never be equated to pounds coins.

I'm sure she would make a beeline for you if she ever met you, for your buffoonery and lack of understanding of the world is as great a disability as any, even more tragic in one who should be old and wise enough to know better by now. She would feel sorry for what you are missing out on, as indeed I do, my hurt and anger aside. I too was ignorant about disability before Natty was born. I have since made up for that, and it is not too late for you to learn that inclusion is a two-way street. The only burden I'd rather not have on my shoulders is tackling the misinformed and comforting those upset by thoughtlessness such as yours.



I have oft come across those who are purposely hurtful and hateful, the Geoffery Clarks of the world, the trolls of life. But my motto is to ignore them, not put air in their lungs by fuelling their hatred, to simply shine light on their darkness.

But I do not for one second believe that you are one such individual Colin. Do you really want to euthanise the disabled? Of course not.

Did you let your Councillor’s hat slip and your true colours show? Yes, even if those true colours were just hot-headedness and a desire to provoke and hurt, and that will simply not do. As a former teacher I understand the importance of always acting responsibly in public and you did not.

Are you out of touch with social media? Yes. You never dreamed the stone would roll so far and pick up such hateful moss along the way, much of it exaggerated, out of context and frankly more worrying than your initial comments. The 'army' of people you have upset is far greater than the small collection of voters you represented. “Scores” doesn’t come close to covering it.

Did you do a lot of good in your career and were you well respected by the people of Wadebridge? Yes, and I have spoken to many of them personally, being a very local lady. I actually felt a little bit sorry for you as I watched the proceedings unfold, because you seemed a little naiive.

It’s time to remove your blinkers now and enjoy the jigsaw of life around you. To see what we can all learn from each other. I hope that other disability groups and parents will offer you an olive branch such as I am doing now.

I wish you a happy retirement, although my mind's eye envisages an embarrassed brood of grown up children and a wife who wishes you had kept your mouth shut. An inbox full of hatred and your name smeared across every paper. Bitterness fills the air.

It’s not too late to meet with us, or other disability groups, share a coffee and make amends properly.
I for one, thank you for doing the right thing and for stepping down.

We now need to channel our energies in proper disability training for all council staff, starting now.


Yours sincerely




Hayley Goleniowska
Author of Downs Side Up
Cornwall