Showing posts with label outstanding contribution. Show all posts
Showing posts with label outstanding contribution. Show all posts

An Outstanding Award for MADs Down Syndrome Blogs


My raw emotions captured by Tom Arber 

6,500 blogs were nominated

Over 25,000 votes were cast

On Friday night the winners of the 
MAD Blog Awards were announced

Outstanding Contribution Awatd for Downs Side Up and a Best Food Blog Awards (pictured here) for Frugal Queen 

My Mad Blog Awards Poem

For once no nerves on that blissful, quiet train ride 
No child to placate, no "mummy"s to field
No speeches to deliver or media to court
This adrenaline-free trip, a treat for me

Soaked deep in scented bubbles, bathed to a prune
Heavenly! Decadent room service and a little fizz
As I planned what to wear, how to scrub up
A #post40blogger, remembering what it's like

A time to hug online angels who lift and carry
Technical tips for the bewildered, counter the trolls 
Who comfort, share, advise and support
My collaborative online family

So very proud to be chosen, heard, read
So very humble to witness the power of our words
So very determined to keep our community going
So many thoughts in my head, my heart swelled

Such diversity danced before me
Pregnant, gay, special needs, Mums, Dads too
The PR gurus and those with a message
My original motivation rose to the fore:

Support for new parents and
Stem the fear of Trisomy 21

And as the tribute film rolled
So sprang forth the tears
The sobs, wracking, shaking, wrapped in guilt and love
So much more than a glass award

The trophy I want remains far from grasp

I clutched Dr Ranj as he whispered that he understood
His words of encouragement; to keep up the pace 
To never give up trying

To get the world to embrace, accept and include
Not seek to eradicate or hide from view

Thank you Dr Ranj for your encouragement

_______________






So very proud to know and work alongside every one of these finalists. And huge love to Team Honk for shining the way, and drawing us all in to your fabulous fundraising. 

Outstanding Contribution Bloggers

This award recognises that blogger who has contributed most to their community, through campaigning, charity work and practical support, and was sponsored by Thorntons. These are bloggers nominated by their peers and winners were chosen by the judges.
Mammasaurus/Team Honk


The MADs Outstanding Contribution Bloggers take to the stage


With special thank you to:

Sally Whittle and sponsors Parentdish for putting so much effort in to a fabulous evening. 

All my fellow Outstanding Contribution finalists who work so tirelessly to change the world in so many ways.


The Royal Garden Hotel for making me so welcome (and giving me a cheeky upgrade.)

My dinner neighbour, Tim from Halfords (and apologies for making him cry get something in his eye whilst eating his panacotta).

To Mummy Barrow for holding my hand.

Fellow Team T21 bloggers Tom from the Futures Rosie and Sarah from Don't Be Sorry for also striving to make the world a better place for those with Down's syndrome. Congratulations to both for winning awards, Best Blog, Best Writer and Best Newcomer respectively!

CBeebies Dr Ranj for quite simply being incredibly supportive, remembering my name from last year, reading my letter to Richard Dawkins and, despite the bouncy exterior, and ambidextrous eyebrows, being seriously genuine and absolutely 'getting it'.

To Spewing Mummy for sharing a taxi ride from Paddington and educating me further about HG.


To My Two Mums, Skint Dad, Chris Mosler, Gammon and Chips, Merrily Me, Suzanne, Rachel Edwards and Steph Curtis for making my trip unforgettable. 





Champagne buckets full of love and ladlefuls of tears

Way back on Mother's Day this year I sat alone in my kitchen and sobbed at the news that a panel of judges had chosen me as one of 10 bloggers who had been noted for their Outstanding Contribution




I cried with pride, I cried with surprise, I cried with tiredness, I cried for the way we have yet to go.

The months passed and I grew excited for the glitzy, star-studded evening at the Royal Kensington Garden Hotel, hosted by Sally Whittle and her team at the MAD Blog Awards, Tots 100 and Parentdish.
As the day dawned, I dusted off my fave shoes and dress and I caught my train from Cornwall to London. I revelled in the quiet solitude and absence of internet. It was enforced relaxation.

I was looking forward to meeting some of my favourite bloggers again, my gurus and inspirations, and getting to know new ones over a glass of wine. The prospect of finishing a sentence without interruption is always an exciting thought as a parent too.

But my mind could never move far from Jennie Henley of Edspire. I wondered how she would find the strength to attend the event which she was doing in honour of Matilda Mae. I worried about her health as she faces a miscarriage. But I knew she would have friends to hold her up as she collected the award we all hoped so fervently she would win, but I worried none the less.

After a freshen up on arrival in the Big Smoke, I met lovely supportive Kate of Kate On Thin Ice in our hotel bar and we shared a little snifter and an appraisal of all that is great about blogging before catching a taxi to the venue together. (Well, it's hard to walk all of 500 yards in pink patent stiletto heels... )

As we entered the foyer my nerves rose as I remembered my inability to match the real names to the blog names and faces as well as avatar images of all the writers present. I am, after all, the one who asked Sally Whittle if she was a blogger at the Legoland Winsor day out. I hang my head in shame. (Sorry Sally!)

My tactic of simply gushing "Hello daaarling" at everyone worked though, and the lovely young bloggers who we joined just giggled at my cluelessness. Someone made my evening by saying I could be excused my failings as I'm so nice!

I really enjoyed the company of the funny Sarah Grenglish and WallyMummy who write Just a Normal Mummy and the oh so sweet Filipa from Gourmet Mum in the bar and I was so honoured to meet Actually Mummy's beautiful family and got chatting to her gem of a husband. The conversations about changing the world of paediatrics had started.



It was time!

Time to go to the Awards amongst a bussle of excited chat about hair, shoes and dresses and make-up along the red carpet (and that was just the men!) and onto a photo shoot  and a glass of bubbles with the simply gorgeous Dr Ranj from CBeebies.

I took the moment to whisper in his ear and ask him if he was a real doctor (he is) and tell him that Downs Side Up works with the NHS to improve the delivery of diagnosis of Down's Syndrome. No time the present to push for that change...

Unfortunately the leaning forward and whispering looked like I was accosting the poor man. Ooops!










I was delighted to be sitting next to Michelle from Mummy from the Heart, who is gorgeous inside and out, a real hoot, and who made me eat more risotto "to soak up my wine." Very sensible. We giggled with Tom, Dr Ranj and Vanessa from HPMcQ, who I described as a priceless cross between Anthea Turner and Amy Winehouse.
I was completely rubbish at taking enough photos on the night because, well, I just got stuck in chatting mode, but here's a selfie of Michelle and I.





Photography by Tom Arber
The Ceremony began and so very many of my favourite bloggers won awards, you can read the full list here, including two other Cornish bloggers Coombe Mill (Best Family Fun) and Frugal Queen (Best Food Blog) and fellow Down's Syndrome advocate Tom from The Futures Rosie who took home Best New Blog. I couldn't have been prouder. I stood to clap as he collected his trophy which he dedicated to Rosie.




Look What Love Has Done
The final category of the evening came, that of Outstanding Contribution and we were all stunned into silence which very quickly turned to tears and quiet sobs as a beautiful film was shown highlighting the work that each and every one of those women had selflessly done. I couldn't believe I was named amongst those who had fundraised on a gigantic scale, travelled the world helping others, given of themselves for free, supported women to get through the most difficult of times, raised awareness of SIDS and other medical conditions, issues surrounding premature birth, brought political fights to the fore, campaigned in parliament, the list goes on. 


                       


I hadn't set out to do any of that in the beginning, but Natty, Downs Side Up, the Down's Syndrome community had taken me on its own, organic journey. 


All photography by Tom Arber


Instead of simply reading out the winner's name, we were then all invited to the stage.

Alexander Residence because her videos are hysterical and THAT’S the way to raise money for charity. Penny works very hard on her blog and putting PRs in touch with other bloggers. She has a wealth of knowledge and is never too busy to share it.
Childcare is Fun because Fiona’s blog offers a free parenting advice service through which Fiona tirelessly answers dozens of queries a day. When she’s not blogging, Fiona organizes charity fun days for Save the Children, runs marathons for charity and is helping to organise a fundraising programme for baby Noah, who was born with Spina Bifida and hydrocephalus.
Dorky Mum because no cause is too small for Ruth to promote on her blog, and she always does it so eloquently. Ruth’s constant, unrelenting belief that change can and will happen is joyous, and her support of campaigns from Save the Children is deeply inspiring.
Downs Side Up has worked miracles for awareness of Down’s Syndrome in a very short time. Hayley has a gentle way of saying important things that help change perceptions, making us feel a part of her fight.
Edspire because in the face of terrible loss, Jennie has found the strength to support other families by raising awareness of SIDS and beginning to fundraise for charities that help families suffering the loss of a baby.  Beyond this, Jennie continues to be a fantastic mum to toddler twins, with inspiring crafts and fun activities.
Kate on Thin Ice because Kate is an understated force for change, quietly boosting the mojo of Mums via her blog and regular Twitter chats and parties, and regularly helping to raise awareness for charities online.
Mummy from the Heart because she goes out of her way to support and offer advice to new bloggers, on her blog, and through conversations on Facebook and Twitter. A busy Mum, Michelle isn’t afraid to step back from blogging to keep a healthy balance with her real life and family.
Not Even A because Kylie is an absolute rock for Mums in the premature baby community, generous with her time and advice. Kylie campaigns tirelessly for Bliss and baby charities to raise awareness of neo-natal care, and has inspired bloggers in the past year by overcoming huge adversity and still sharing support with other members of the community.
Patch of Puddles because Merry is helpful and supportive to so many in the blogging community, especially those who have lost babies.  When she isn’t home-educating her children and running a business, Merry works tirelessly with charity, bringing together bloggers to sponsor children with World Vision.
Thinly Spread because Christine is the parent we’d all like to be – intelligent, unflappable, and barely a hair out of place. But also because Christine balances blogging and blog activism perfectly, producing amazing words and gorgeous images into the bargain. She’s like the wise brown owl of the blogging world!

The tears flowed. Some held it together more than I, but to the stage we went, all conscious of Jennie, how much more emotional than the rest of us she would be feeling. I thought of Dorky Mum and Kylie from Not Even a Bag of Sugar who could not be there. I could feel their presence too. I thought of all the causes we held close in our hearts, the lives of all those that had been touched along the way.

As they read out Jennie's name as the winner, I watched her beautiful face crumble into what looked more like grief than pride, for that award must have been so very bitter sweet for her, her husband, her twins. We all stood, holding hands, hugging, touching shoulders, in a moment of shared consciousness that is hard to describe. It was like a group hug that sent a special force back towards Jennie. 

Then another surprise. Another reason for more tears. 
Every one of the writers in that category was to receive a special award, a precious glass reminder of why we have to carry on, to be the change we wish to see in the world for our children.



Thank you to everyone who made the evening so very special. It is one I will never forget. Thank you to everyone who has read and loved my blog. Thank you to everyone who voted for it. Thank you to everyone who strives with me for a fully inclusive society and who works for better provision for childen with SEN in schools.  Thank you to those who have dropped their fear of Down's Syndrome and instead swapped it for marvel at the beauty of Natty and her fellow models with disabilities. And thank you to everyone who shares my shock at how our civilised society can allow terminations up to and including during birth for babies like my daughter, for hers is a life worth living.



Then Came the Fun Part
Photography by Tom Arber (with the exception of the blurry ones that I took on my phone!)

Afterwards there was a more relaxed feel to the evening. Wine flowed and music played and some even found their way on to a bouncy surfboardy type affair. I floated happily from one writer to the next and was particularly fond of my chats with beautiful Cakes Photos Life and her husband, Rock Chick Alice My Son My Life My Way, the superbly, hilariously tipsy Childcare is Fun and the completely genuinely caring My Two Mums. Actually Mummy looked divine in a furry leopard print onesie, the hilarious antedote to her earlier floor length gown.

And then there was Mr Mozzarella, an impossibly bouncy chef from the Just Eat adverts who seemed to have more than just a passing penchant for blogging Mummies all dressed up to the nines, pictured above with Louise Turner of All The Camping Gear. But the giggles were a welcome contrast to the high and draining emotion of the day.

I returned to my hotel at Pumpkin O'Clock, happy, uplifted, tired, full, extremely proud, feeling inspired...  and with a glowing bruise on my elbow caused by a dancing collision with Mr Mozzarella's ladle and the note to myself never to wear unfeasibly tight magic underwear again, for it riseth up.




H x







The Rollercoaster of Life: A MAD Bloggers Day Out


A MADs Day Out to Legoland Windsor


The MAD Blog Award finalists and their families


There were MAD bloggers galore
new faces and some seen before.
it was a chance to meet before the big night
and thank our families for their support.


Hayley, Natty and Mia from Downs Side Up


That surreal gulf between knowing an avatar
and spotting someone in reality.
I missed many, for which I kick myself.
I promise to learn names, blogs and Twitter handles.
I will!







New friendships were forged.
puppy love blossomed.
children were nervously chased
as conversations remained half finished.


Natty's day out; eating doughnuts


Too much sugar was consumed
adrenaline made us squeal.
boundaries were pushed
new experiences devoured.

We jumped queues with our gold status
collected badges along the way
our lanyards the souvenir
of a fabulous day..

Reluctance to end each ride
drops of rain, plastic ponchos
tears at the 4D film
we negotiated our lows

Allowing safe risk, letting go
takes practice for me.
feelin sick with each twist and turn
we watched Natty and sis devour the day with gusto.


Up, up and away
"By myself!"

























Soon climbing wasn't enough
Natty wanted the exciting stuff!
My phobia of rollerscoasters
had to be concealed.
(As you can see I hid it perfectly!)


Fun at Legoland

So we ended on a high!
The kids got me on a roller coaster
all the while protesting that I have been pushed screaming bravely jumped out of an aeroplane for charity once and that I have nothing to prove!

Home we came,
Natty snored all the way
and woke this morning chattering
"Mummy scream, Mia scream, Natty scream, Daddy scream."


Thank you MAD Blog Awards and Legland Windsor for your hospitality.
xxxx

MAD Blog Award Finalist: Outstanding Contribution

I find this kind of blog post difficult to write. 
It's sort of embarrassing and I can certainly think of a couple of others who should be standing where I am now, some bloggers I nominated myself in fact.


pride

But I am so very enormously proud to have been shortlisted as a finalist in the MAD (Mums and Dads) Blog Awards. The email came through on Mother's Day, which had been a bit different as my husband was working away. As I sat alone in the kitchen after the girls had gone to bed, I read and the tears began.

I rang my mum who was immensely proud. Then I went back to read the email again, just to be sure.

Yes, I had been shortlisted as one of 10 finalists in the surprise category that had been opened after the voting (or nominating as they call it, which confused silly old me, and led me not to ask even my family to vote for me, oooops). This category was called Blogger who has made an Outstanding Contribution.

I can't even write that without welling up again. Good grief.

Now first of all I'd like to say that what I do, the Downs Side Up stuff, is not for any recognition or reward or payment. Basically I saw that the World was fearful of Down's Syndrome, so I began trying to change the World for my daughter and other families, so that they can have the best possible life. I also didn't want any other parents to feel as desperate as I did in the early days, purely out of ignorance and my own fear, so to them I offer tips, advice and hope.

Of course, the blog was how it all began. Downs Side Up is 16 months old now but the blog has long since become the hub of a large wheel of activity. I don't want to bore you, and even I find it hard to remember it all, so here's a list of some of the things I've done this year, in no particular order;


  • I've met prospective parents and new parents for coffees and chats, and written to many hundreds of families online, often simply pointing them in the direction of a charity or organisation that can help them.
  • The blog was voted 8th Top European Blog and 10th Top Family Blog by Circle of Moms readers.
  • I became the Britmums Special Needs Editor, producing a round-up of the best posts around monthly.
  • I was invited to give Evidence in Parliament at the multi-party Enquiry into the Disability Abortion Law, where I pushed home the lack of support that families get when making such a decision, using anecdotes from those I have chatted to.
  • I was asked to speak at the Salvation Army Conference and a local church group working on disability services.
  • I've gone into local schools to talk to youngsters about inclusion and Down's Syndrome
  • I have met amazing adults with learning disabilities and been inspired by them on my own journey as we have become friends.
  • I've produced a little DVD to show to medical professionals, giving guidance on delivering a diagnosis and language used.
  • I've posed naked, apart from a pair of mismatched funky socks, to raise funds for our 3 favourite DS charities. Yes, it was terrifying. @Kateonthinice made me do it!
  • I've done last minute radio interviews on many subjects from disability benefits to parenting and blogging for BBC Radio Devon, BBC Radio Cornwall, Spin Radio and Heart Radio. 
  • I found 7 other models with DS in the UK and organised a meeting at the DSA Head office for a celebratory photoshoot which ended in a lovely positive article in The Sun. See the behind the scenes fun here as our children change the face of advertising and encourage companies to be more inclusive.
  • We've chatted on the ITV Daybreak sofa and stolen Kate and Dan's Danish pastries live on air.
  • Made 500 people cry and stand in an ovation at Britmums Live after listening to What to Say When a Baby is Born with Down's Syndrome. (They are hoping to get Kleenex to sponsor this year!)
  • ITV Westcountry featured us and our chickens in a piece about modelling and blogging.
  • We've been featured in Bella Magazine, The Sun, Cornwall Today, The Mail and The Express and Woman's Own.
  • I've sat through the night writing open letters to bigots, such as Geoffery Clark and Colin Brewer, there was a Girl Guides Brown Owl too. The letters have gone viral.
  • I organise linkies and guest posts sessions to encourage others to write and share their experiences, for blogging is so cathartic.
  • I've written articles and guest posts for SEN Magazine, Mummy and Me, My Child and Me, Learning Disability Today, Foundation for People with Learning Disabilities, Elite Magazine, the Makaton Charity, MamaUK and so many more.
  • I am spreading the word that 21st March is World Down Syndrome Day and encouraging as many people as possible to get involved to spread awareness.


Well, you get the idea.

But to have that recognised is... well, I am very proud and it means that my efforts are having an effect.

Downs Side Up now takes up as much time as a full time job, mostly late into the night and when the children are at school. We live in Cornwall, so all that toing and froing to London is a bit of a pain, and we are often out of pocket. I sometimes have to turn things down because I can't fit it all in. We've even talked about moving to enable me to further my work.
I feel I have a duty to carry on, because I can.
And people seem to like listening and reading, so that's a bonus :)

The message is spreading that our children are a wonderful enhancement in life. So essentially all the late nights are worth it. So I'll carry on if you don't mind...

Thank you to everyone who nominated me for this award. I already feel like a winner and am in extraordinary company. I think all 10 finalists should all just have a group hug on the night. And thank you to everyone who has lifted me, inspired me and encouraged me. Those who have heped me through the scary moments when the trolls said unspeakable things and I nearly gave up through fear, those who helped spread the word, those who demanded I continue to shine a light into the darkest of shadows.

Thank you all.

H x


Finalist in the MADS: Outstanding Blogger Award



I am always honoured and humbled that people like to read my rambling, emotional outpourings, tips and tricks. That they sweetly support my forays into nakedness, public speaking or whatever the latest media plan is.

I am reduced to tears at least weekly by readers' stories both positive and sad, and made to smile daily by the photos they send me of their wonderful children.

I am very proud to have been nominated in the Best Family Blog and Best Blog categories in this year's Mum and Dad Bloggers MADS by Parentdish. The blog gets neglected sometimes because other things take over, but I try my darnedest. Downs Side Up really has become a full time unpaid job so thank you.

THEN I was bowled over to hear that I had been nominated as a blogger who had made an outstanding contribution. Gosh. 

I always consider myself to be a 'rubbish' blogger.

To be honest I didn't know what a blog was when I started Downs Side Up just over a year ago and so I had no bench mark, nothing to compare myself to. I honestly didn't know what I was trying to be, so I just became what I had wanted to see and read when Natty was born. That has always been my only motive.

I found that putting on blinkers (ie not reading other similar blogs) was the only way to find my own voice, say my own thing in my own way, and this often leads me to not read or comment on others' blogs as often as I should. I hope they forgive me, although I'm getting better now that I've discovered Bloglovin'.

I probably work in a slightly artistic way: late into the night, I'm fluffy about deadlines and rather disorganised in my email inbox. I work from the heart, the gut feeling, the muse, the tiniest of motivations, a heart-stopping photo. I actually enjoy talking to people on Twitter, possibly a bit too much, but never for gain of followers.

I might promise you an article, and it'll be great, but you might have to remind me to finish it. You might ask me to review a product. I'll turn you down unless I think my readers would actually like it. Money doesn't ever feature for me, although it might make me remember to write your article ;) And actually, when one spends 10 hours a day on one's blog, a little recompense, just to cover one's costs might be prudent in the long run.

But as my blogging journey progressed, I got distracted. Writing sweet, inspirational, informative, powerful blog posts became the skeleton upon which speaking to doctors, teachers, students, parents, training, campaigning in parliament, taking ones clothes off for charity and to celebrate mummy bodies and pushing companies to include models with disabilities became the flesh. Parents told me I was changing their lives and that became the focus.

I have always counted this as being part of blogging properly. I mean blogging is always at the core of something more, right? But still I am a novice blogger. My site is not glossy and I still think SEO is someone in charge of a large company.

Then, along came the awards ceremonies, well the first of the year, the MADS. I was nominated in the MADS and BRITS last year which is a wonderful boost for any writer. Lots of my favourite bloggers won these awards, others I didn't know before are now an inspiration to me. I went to Brits Live and came back a better blogger and a bit less scared of London. Read Thank You for Having Me here. 

But far too distracted by sitting throught the night researching disability abortion law before facing a panel of MPs to read the MADS page I assumed 'nominations' meant just that, and that voting would come later. I sat and proudly smiled at being nominated.... and missed the voting boat.

Should I have been filling my blog with requests for them? I didn't. I actually don't like touting, but I might have asked my Mum and friends to put in a word, you know, to save face :)

@HerMelness recently wrote The Mad World of Blogging Awards, a post about how important it is to celebrate what you have achieved outside of and in addition to these official awards. I won't lie, it would have been nice to go through to the shortlist, to further spread our word and awareness of DS, but I will focus on other personal achievements. Thank you Mel for keeping us on the straight and narrow in Blogland.

Then, suddenly, I heard that there was a new category for the blogger who has made an outstanding contribution and that I had been nominated by parenting expert Sue Atkins. (I've since learnt others have nominated DSU too). I was utterly overwhelmed and very emotional. I am so very very proud to be considered in that light and yes, you can vote (it's confusingly called nominating) and yes, I will put the link here, if only to show you I am not a rubbish, disorganised blogger all the time ;)

Since writing this post I was honoured to be selected as 1 of 10 finalists in the Outstanding Contribution category. Here's my reaction to that news and a summary of what I've been up to this year on Downs Side Up.

I find this kind of blog post difficult to write. 
It's sort of embarrassing and I can certainly think of a couple of others who should be standing where I am now, some bloggers I nominated myself in fact.




But I am so very enormously proud to have been shortlisted as a finalist in the MAD (Mums and Dads) Blog Awards. The email came through on Mother's Day, which had been a bit different as my husband was working away. As I sat alone in the kitchen after the girls had gone to bed, I read and the tears began.

I rang my mum who was immensely proud. Then I went back to read the email again, just to be sure.

Yes, I had been shortlisted as one of 10 finalists in the surprise category that had been opened after the voting (or nominating as they call it, which confused silly old me, and led me not to ask even my family to vote for me, oooops). This category was called Blogger who has made an Outstanding Contribution.

I can't even write that without welling up again. Good grief.

Now first of all I'd like to say that what I do, the Downs Side Up stuff, is not for any recognition or reward or payment. Basically I saw that the World was fearful of Down's Syndrome, so I began trying to change the World for my daughter and other families, so that they can have the best possible life. I also didn't want any other parents to feel as desperate as I did in the early days, purely out of ignorance and my own fear, so to them I offer tips, advice and hope.

Of course, the blog was how it all began. Downs Side Up is 16 months old now but the blog has long since become the hub of a large wheel of activity. I don't want to bore you, and even I find it hard to remember it all, so here's a list of some of the things I've done this year, in no particular order;


  • I've met prospective parents and new parents for coffees and chats, and written to many hundreds of families online, often simply pointing them in the direction of a charity or organisation that can help them.
  • The blog was voted 8th Top European Blog and 10th Top Family Blog by Circle of Moms readers.
  • I became the Britmums Special Needs Editor, producing a round-up of the best posts around monthly.
  • I was invited to Number 10 Downing Street to a Mencap Reception hosted by Samantha Cameron. I met Baron Saatchi, Jo Whiley, The Edge and many many inspirational LD parents.
  • I was invited to give Evidence in Parliament at the multi-party Enquiry into the Disability Abortion Law, where I pushed home the lack of support that families get when making such a decision, using anecdotes from those I have chatted to.
  • I was asked to speak at the Salvation Army Conference and a local church group working on disability services.
  • I've gone into local schools to talk to youngsters about inclusion and Down's Syndrome
  • I have met amazing adults with learning disabilities and been inspired by them on my own journey as we have become friends.
  • I've produced a little DVD to show to medical professionals, giving guidance on delivering a diagnosis and language used.
  • I've posed naked, apart from a pair of mismatched funky socks, to raise funds for our 3 favourite DS charities. Yes, it was terrifying. @Kateonthinice made me do it!
  • I've done last minute radio interviews on many subjects from disability benefits to parenting and blogging for BBC Radio Devon, BBC Radio Cornwall, Spin Radio and Heart Radio. 
  • I found 7 other models with DS in the UK and organised a meeting at the DSA Head office for a celebratory photoshoot which ended in a lovely positive article in The Sun. See the behind the scenes fun here as our children change the face of advertising and encourage companies to be more inclusive.
  • We've chatted on the ITV Daybreak sofa and stolen Kate and Dan's Danish pastries live on air.
  • Made 500 people cry and stand in an ovation at Britmums Live after listening to What to Say When a Baby is Born with Down's Syndrome. (They are hoping to get Kleenex to sponsor this year!)
  • ITV Westcountry featured us and our chickens in a piece about modelling and blogging.
  • We've been featured in Bella Magazine, The Sun, Cornwall Today, The Mail and The Express and Woman's Own.
  • I've sat through the night writing open letters to bigots, such as Geoffery Clark and Colin Brewer, there was a Girl Guides Brown Owl too. The letters have gone viral.
  • I organise linkies and guest posts sessions to encourage others to write and share their experiences, for blogging is so cathartic.
  • I've written articles and guest posts for SEN Magazine, Mummy and Me, My Child and Me, Learning Disability Today, Foundation for People with Learning Disabilities, Elite Magazine, the Makaton Charity, MamaUK and so many more.
  • I am spreading the word that 21st March is World Down Syndrome Day and encouraging as many people as possible to get involved to spread awareness.
  • Natty has been awarded a Local Hero Child of Courage or Achievement Award for her modelling by Pirate FM.
  • Natty has been chosen as one of 50 finalists out of 23,000 entrants into the Face of Kinder Competition.


Well, you get the idea. It's been a head-spinningly busy, fly-by-the-seat-of-your-pants kind of year.

But to have that recognised is... well, I am very proud and it means that my efforts are having an effect.

Downs Side Up now takes up as much time as a full time job, mostly late into the night and when the children are at school. We live in Cornwall, so all that toing and froing to London is a bit of a pain, and we are often out of pocket. I sometimes have to turn things down because I can't fit it all in. We've even talked about moving to enable me to further my work.

I feel I have a duty to carry on, because I can.

And people seem to like listening and reading, so that's a bonus :)

The message is spreading that our children are a wonderful enhancement in life. So essentially all the late nights are worth it. So I'll carry on if you don't mind...

Thank you to everyone who nominated me for this award. I already feel like a winner and am in extraordinary company. I think all 10 finalists should all just have a group hug on the night. And thank you to everyone who has lifted me, inspired me and encouraged me. Those who have helped me through the scary moments when the trolls said unspeakable things about our precious daughter and I nearly gave up through fear. Those who helped spread the word, those who demanded I continue to shine a light into the darkest of shadows.



Thank you. Thank you all.



H x